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Community Integration Questionnaire (CIQ)

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Background and Rationale of the Community Integration Questionnaire (CIQ)

The Community Integration Questionnaire (CIQ) is intended as a brief, reliable measure of an individual¡¦s level of integration into the home and community.  The CIQ was developed by a small group of experts interested in assessing community integration for persons who have experienced traumatic brain injury.  These experts met together to establish a consensus on what characterizes an individual¡¦s experience in the community, especially after the acute rehabilitation phase.
 
It is important to note that this questionnaire represents a finite set of indicators of community integration, and as such does not encompass all possible indicators of integration.  Therefore, it is recommended that the CIQ be used in concert with similar assessments of impairment, disability, environmental barriers, and demographic descriptors.
 
Although the CIQ was designed specifically for individuals with traumatic brain injury, it is applicable to all individuals, disabled or not, living outside institutions.

Administration

The CIQ is normally completed by the individual being assessed.  In most cases an interviewer should be present to assist with interpretation of specific items.  In certain instances, the individual being assessed may not be able to complete the questionnaire (e.g., due to expressive or receptive language deficits, memory impairment, physical disabilities, etc.).  In these instances, a person who is familiar with the individual being assessed may complete the form, provided that the individual being assessed is present when the form is completed.
 
Most of the questions are directed at how the individual performs a specific activity within the household or the community.  Responses usually indicate that the individual performs the activity alone, with another person, or that the activity is typically performed by someone else.  For some responses, the individual being assessed may find it difficult to decide which response fits best with how a particular activity is performed. In these instances, the individual should be encouraged by the examiner to choose the response reflecting the usual or typical performance of that activity.

Name:______________________________                   ID Number:___________                              
Education:__________________________                    Sex:___________ Marital Status:___________                         
Occupation:_________________________                                                                                                      
Address:____________________________                                                                                                                          ___________________________________                                                                                                                                          
 
Date of Birth: _____ / _____ / _____
Date of Test: _____ / _____ / _____
Age: ___________
Did a proxy complete the questionnaire?            Yes:______  No:______             
Relationship of proxy to respondent:___________                                                                  
 
CIQ Score:
                     Home Integration Scale: ___________                                           
                     Social Integration Scale: ___________                                           
                     Productivity Scale:         ___________                                                    
                     CIQ Total Score:            ___________                                                                                     

Community Integration Questionnaire

1.       Who usually does shopping for groceries or other necessities in your household?
          ___       yourself alone
          ___       yourself and someone else
          ___       someone else
 
2.       Who usually prepares meals in your household?
          ___       yourself alone
          ___       yourself and someone else
          ___       someone else
 
3.       In your home, who usually does normal everyday housework?
          ___       yourself alone
          ___       yourself and someone else
          ___       someone else
 
4.       Who usually cares for the children in your home?
          ___       yourself alone
          ___       yourself and someone else
          ___       someone else
          ___       not applicable/ no children under 17 in the home.
 
5. Who usually plans social arrangements such as get-together's with family and friends?
 
          ___       yourself alone
          ___       yourself and someone else
          ___       someone else
 
6.       Who usually looks after your personal finances, such as banking or paying bills?
          ___       yourself alone
          ___       yourself and someone else
          ___       someone else
 
                                                                                                                                 
  Can you tell me approximately how many times a month you now usually participate in the following activities outside your home?
 
7.       Shopping
          ___        Never
          ___        1-4 times
          ___        5 or more
 
8.       Leisure activities such as movies, sports, restaurants, etc.
          ___        Never                  
          ___        1-4 times            
          ___        5 or more
 
9.       Visiting friends or relatives
          ___        Never
          ___        1-4 times
          ___        5 or more
 
10.    When you participate in leisure activities, do you usually do this alone or with
         others?
          ___       mostly alone
          ___       mostly with friends who have head injuries
          ___       mostly with family members
          ___       mostly with friends who do not have head injuries
          ___       with a combination of family and friends
 
11.     Do you have a best friend with whom you confide?
          ___        yes          
          ___        no
 
12.     How often do you travel outside the home?
          ___       almost every day
          ___       almost every week
          ___       seldom/never (less than once per week)
 
13.     Please choose the answer below that best corresponds to your current (during the past month) work situation:
          ___       full-time (more than 20 hours per week)
          ___       part-time (less than or equal to 20 hours per week)
          ___       not working, but actively looking for work
          ___       not working, not looking for work
          ___       not applicable, retired due to age
 
14.     Please choose the answer below that best corresponds to your current (during the past month) school or training program situation:
          ___       full-time
          ___       part-time
          ___       not attending school or training program
 
15.     In the past month, how often did you engage in volunteer activities?
          ___       Never
          ___       1-4 times
          ___       5 or more

Click here to print the Community Integration Questionnaire.
 
 

Scoring Guidelines

The CIQ consists of a total of 15 questions.  The overall score, which represents a summation of the scores from individual questions, can range from 0 to 29.  A higher score indicates greater integration, and a lower score reflects less integration.  The CIQ can be further divided into three subscores, corresponding to integration in the home, social integration, and productivity.  Procedures for deriving the subscores are outlined on the scoring sheet.
 
The following guidelines provide scoring information for specific items or groups of items.
 
 
Items 1 to 6:
 
Score:
2         =        The activity is performed alone
1         =        The activity is performed with someone else
0         =        The activity is performed by someone else
 
Note:   For item 4, if there are no children under 17 in the home, the average (mean) score for items 1 through 3 and item 5 should be substituted.
 
Items 7 to 9:
 
Score:
2        =        The activity was performed 5 or more times in the past month
1        =        The activity was performed 1 - 4 times in the past month
0        =        The activity was not performed in the past month
 
Item 10
 
Score:
2        =        Mostly with friends without head injury or combination of family and friends
1        =        Mostly with friends who have head injuries or with family
0        =        Mostly alone
 
Item 11
 
Score:
2        =        Yes response
0        =        No response
 
Item 12
 
Score:
2        =        Almost every day
1        =        Almost every week
0        =        Seldom/never (less than once per week)
 
 
Items 13 to 15
 
Although these items are collected individually, they will be combined to form one variable, Productivity.  The scoring of this variable is dependent on the combination of answers to questions 13, 14 and 15.  On page 4, is a listing of answer sets to these questions and their associated score.
 

Scoring of the Productivity Variable

Question#13
Work
  Question #14 School   Question#15
Volunteer Work
Score
Not working/not looking + No school + No Volunteering = 0
Not working/not looking + No school + 1-4 times/month = 1
Not working/not looking + No school + 5 or more times/month = 1
Not working/looking + No school + No Volunteering = 0
Not working/looking + No school + 1-4 times/month = 2
Not working/looking + No school + 5 or more times/month = 2
Retired due to age + No school + No Volunteering = 0
Retired due to age + No school + 1-4 times/month = 2
Retired due to age + No school + 5 or more times/month = 3
Retired due to age + Part-time + No Volunteering = 4
Retired due to age + Part-time + 1-4 times/month = 5
Retired due to age + Part-time + 5 or more times/month = 5
Retired due to age + Full-time + Any answer = 5
Not working + Full-time + Any answer = 3
Not working + Part-time + Any answer = 4
Part-time + No school + Any answer = 3
Part-time + Part-time + Any answer = 4
Part-time + Full-time + Any answer = 5
Full time + No school + Any answer = 4
Full time + Part-time + Any answer = 5

Subscales


 

Subscales have been developed to allow an analysis of integration within specific domains of everyday life.  Items have been grouped with respect to their association with: 1) activities primarily related to the home; 2) activities associated with socialization; and 3) educational or vocational activities.  These groupings have been made both logically and on the basis of principal components analysis of items which cluster together. Separate home integration, social integration and productivity subscale scores are derived as follows:
 
Home Integration:              Summation of items 1 through 5
 
Social Integration:              Summation of items 6 through 11
 
Productivity:                      Summation of item 12 and the Productivity variable
 
The overall CIQ score is the additive sum of items 1 through 12 and the Productivity variable.

CIQ Scoring Sheet

Item Number Description Sub-Score Score
1 Shopping __________  
2 Prepare Meals __________  
3 Housework __________  
4 Caring for Children __________  
5 Social Arrangements __________  
 

HOME INTEGRATION SUBSCALE

 

__________

6 Personal Finances __________  
7 Shopping (times/month) __________  
8 Leisure activities (times/month) __________  
9 Visiting friends or relatives __________  
10 Leisure activities (with whom) __________  
11 Having a best friend __________  
 

SOCIAL INTEGRATION SUBSCALE

 

__________

12 Travel outside of home __________  
13, 14, 15 Productivity __________  
 

PRODUCTIVITY SUBSCALE

 

__________

  CIQ TOTAL SCORE   __________
Click here to print a CIQ Score Sheet.

The following publications contain development procedures and psychometric properties of the scale.

Willer, B., Linn, R. and Allen, K. (1993).  Community Integration and Barriers to Integration for individuals with brain injury.  In M.A.J. Finlayson and S.H. Garner (Eds.) Brain Injury Rehabilitation: Clinical Considerations.  Baltimore, MD: Williams & Wilkins.  pp.355-375.
Willer, B. S., Ottenbacher, K.J., and Coad, M. L. (1994).  The Community Integration Questionnaire: A comparative examination.  American Journal of Physical Medicine and Rehabilitation, 73(2), 103-111.
Willer, B. S., Rosenthal, M., Kreutzer, J., Gordon, W., and Rempel, R. (1993).  Assessment of the community integration following rehabilitation for traumatic brain injury.  Journal of Head Trauma & Rehabilitation, 8(2), 75-87.
Corrigan, J. D., Deming, R. (1995).  Psychometric characteristics of the Community Integration Questionnaire:  Replication and extension.  Journal of Head Trauma Rehabilitation, 10(4), 41-53.
Heineman, A. W., & Whiteneck, G. G. (1995).  Relationships among impairment, disability, handicap, and life satisfaction in persons with traumatic brain injury.  The Journal of Head Trauma Rehabilitation, 10(4), 54-63.
Schmidt, M. F., Garvin, L. J., Heineman, A. W., & Kelly, J. P. (1995).  Gender- and age-related role changes following traumatic brain injury.  The Journal of Head Trauma Rehabilitation, 10(4), 14-27.
Hall, K. M., Mann, N., High, W. M., Wright, J., Kreutzer, J. S.,  & Wood, D. (1996).  Functional measure after traumatic brain injury: Ceiling effect of FIM, FIM+FAM, DRS, and CIQ. Journal of Head Trauma Rehabilitation, 11(5), 27-39
Rosenthal, M., Dijkers, M., Harrison-Felix, C., Nabors, N., Witol, A., D., Young, M., E., & Englander, J., S. (1996).  Impact of minority status on functional outcome and community integration following traumatic brain injury. Journal of Head Trauma Rehabilitation, 11(5), 40-57.
Sander, A. M., Kreutzer, J. S., Rosenthal, M., Delmonico, R., & Young, M. E.  (1996).  A multicenter longitudinal investigation of return to work and community integration following traumatic brain injury. Journal of Head Trauma Rehabilitation, 11(5), 70-84.
Sander A.M.; Seel R.T.; Kreutzer J.S.; Hall K.M.; High W.M. Jr; Rosenthal M. (1997).  Agreement between persons with traumatic brain injury and their relative regarding psychosocial outcome using the Community Integration Questionnaire.  Archives of Physical Medicine and Rehabilitation ; 78 (4), 353-7
Tepper S.; Beatty P.; DeJong G. (1996).  Outcomes in traumatic brain injury: self-report versus report of significant others.  Brain Injury; 10 (8), 575-8
Millis S. R.; Rosenthal M.; Lourie I.F. (1994).  Predicting community integration after traumatic brain injury with neuropsychological measures.  International Journal of Neuroscience, 79 (3-4), 165-7.
Dijkers, M. (1997).  Measuring the Long-Term Outcomes of Traumatic Brain Injury:  A Review of thte Community Integration Questionnaire. Journal of Head Trauma Rehabilitation, 12 (6), 74-91.
Cattelani, R.; Lombardi, F.; Brianti, R.; Mazzucchi, A. (1998).  Traumatic brain injury in childhood:  intellectual, behavioural and social outcome into childhood. Journal of Brain Injury, 12 (4), 283-296.
Colantonio, A.; Dawson, D.; McLellan, B.A. (1998).  Head Injury in Young Adults:  Long-Term Outcome. Journal of Archives of Physical Medicine and Rehabilitation, 79, 550-558.
Corrigan, J.; Smith-Knap, K.; Granger, C., (1998).  Outcomes in the First 5 Years After Traumatic Brain Injury. Journal of Archives of Physical Medicine and Rehabilitation, 79, 298-305.
Bryant, R.; Marosszeky, J.; Crooks, J.; Baguley, I.; Gurka, J.  (1999).  Interaction of Posttraumatic Stress Disorder and Chronic Pain Following Traumatic Brain injury.  Journal of Head Trauma Rehabilitation, 14, (6), 588-594.
Callaban, C.; Hinkebein, J.  (1999).  Neuropsychological Significance of Anosmia following Traumatic Brain Injury. Journal of Head Trauma Rehabilitation, 14, (6), 581-587.
Gurka, J.; Felmingham, K.; Baguley, I.; Schotte, D.; Crooks, J.; Marosszeky, J.  (1999).  Utility of the Funxtional Assessment Measure after Discharge from Inpatient Rehabilitation. Journal of Head Trauma Rehabilitation, 14, (3), 247-256.
Hanks, R.; Rapport, L.; Millis, S.; Deshpande, S.  (1999).  Measures of Executive Functioning as Predictors of Functional Ability and Social Integration in a Rehabilitation Sample. Journal of Archives of Physical Medicine and Rehabilitation, 80, 1030-1037.
Paniak, C.; Phillips, K.; Toller-Lobe, G.; Durand, A.; Nagy, J.  (1999).  Sensitivity of Three Recent Questionnaires to Mild Traumatic Brain Injury-Related Effects. Journal of Head Trauma Rehabilitation, 14, (3), 211-219.
Sander, A.; Fuchs, K.; High, W.; Hall, K.; Kreutzer, J.; Rosenthal, M.  (1999).  The Community Integration Qestionnaire Revisited:  An Assessment of Factor Structure and Validity. Journal of Archives of Physical Medicine and Rehabilitation, 80, 1303-1308.
Willer, B.; Button, J.; Remple, R.  (1999). Residential and home-based postacute rehabilitation of indiviiduals with traumatic brain injury:  a case control study. Journal of Archives of Physical Medicine and Rehabilitation, 80, (4), 399-406
Cusick, C.; Gerbart, K.; Mellick, D. (2000). Participant-Proxy Reliability in Traumatic Brain Injury Outcome Research. Journal of Head Trauma Rehabilitation, 15, (1), 739-749.
 
            
 

 

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