Additional Resources and Organizations
Family & Friends
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The Waiting Room Through the Looking Glass Acquired Brain Injury Students Club Yellow Pages for Kid's With Disabilities DND Press Well Spouse Foundation STARBRIGHT Family Room Kidsource Online National Family Caregivers Association National Information Center for Children and Youth with Disabilities FAPE: Family & Advocates Partnership for Education Brave Kids The Patient Link's Caring Bridge Parentpals.com Brain Injury Association of America National Association for Home Care Medicare Home Health Care Home Health Services Couples Therapy with Traumatized Partners Family Friendly Fun & Special Needs National Fathers Network Parenting with a Disability National Parent Network on Disabilities
The Waiting Room is a good starting point when anyone gets that "Call" from the hospital about a loved one being in a coma. A rich resource put together by someone who's "Been There".
(TLG) is a nationally recognized non-profit agency and first National Resource Center for Parents with Disabilities. They provide direct services, training, materials and research concerning.
ABIS was founded in January 2000 by students in Nancy Chinn's Coping Strategies for Students With Brain Injuries class at Santa Rosa Junior College, Santa Rosa, CA.. The club is designed to help students with acquired brain injuries--from accidents, illness, tumors, stroke or other trauma--by providing support, education and opportunities for socialization.
This site publishes a service directory for disability resources so people can get reliable information and support. It is organized by state.
Disability Resource Library committed to bring information and resources to the disabled community, and to do its part in working toward the elimination of disabilities.
Well Spouse is a national, not for profit membership organization which gives support to wives, husbands, and partners of the chronically ill and/or disabled.
The is an online community that provides information and support to help parents care for their seriously ill child. There is a new edition each month featuring information from both caregivers and healthcare professionals. Topics include managing your finances, knowing your rights in school and insurance systems, and communicating with doctors. There are also message boards where parents can share their experiences and gain support from each other.
A guide to readings and resources for parenting children with special needs.
NFCA is a grass roots organization created to educate, support, empower and speak up for the millions of Americans who care for chronically ill, aged or disabled loved ones.
This website shares information about disabilities in children and youth.
The Partnership is a new project which aims to inform and educate families and advocates about the Individuals with Disabilities Education Act of 1997 and promising practices.
Brave Kids is a nonprofit organization that serves the needs of children with chronic, life-threatening illnesses or disabilities, using the power of the Internet. Bravekids.org fills a significant void for seriously ill children and children with disabilities, and their families, by providing a comprehensive on-line directory of health care specialists, relevant medical information from health care professionals, pertinent community resources, message boards, and interactive contests for kids. Brave Kids also provides computers to seriously ill children who come from low-income families.
This is the website for Kessler Institute for Rehabilitation. It serves the needs of patients and their families with links to important information. The Patient Link addresses the patient and interfaces institutions, medical personnel and insurers along the way.
A free nonprofit service to keep friends and family in touch during important life events including medical treatment, rehabilitation and end-of-life care.
General information, weekly tips, games, a dictionary, links, and newsletters from therapists, teachers, and a psychiatrist for a variety of disabilities.
NAHC provides articles about choosing a Home Care Provider.
A Medicare website offering comparisons of home health providers identified by zip code.
A Medicare and Medicaid website which offers information regarding the differences between home health and home care and provides information regarding available waiver programs which may reimburse for home-based services.
Couples Therapy with Traumatized Partners is a service provided by the American Association Of Marriage And Family Therapists. -- "Present relationships can be a vital part of the healing environment for trauma survivors or they can be part of the problem. . ."
Resources offers access to mind, body and spirit- enriching information that enhances the quality and enjoyment of family life with special needs.
NFN provides support and resources to fathers and families of children with developmental disabilities and chronic illness, and the professionals who serve them. The NFN develops support programs; produces curriculum and trainings for health care providers and educators, and a wealth of other innovative resources.
Messageboard where parents who have the disability can meet others and share ideas and experiences. This bulletin board is open for topics about how disabled parents manage at home or at work.
A coalition of parent organizations and individuals united to serve children with special needs and their families.