Additional Resources and Organizations
Pediatrics
Last Updated:
NICHCY • disabilities in children and youth; Federal TBI Program Web Page Family Voices EMS for Children Family Center on Technology and Disability National Center on Educational Outcomes American Academy of Pediatrics American Association of Health Plans American Public Health Association Association of Maternal and Child Health Programs Bazelon Center for Mental Health Centers for Medicare and Medicaid Services: State Children's Health Insurance Program Henry J. Kaiser Family Foundation Institute for Child Health Policy Maternal and Child Health Bureau Maternal and Child Health Policy Research Center The focus of our work has included Medicaid, SCHIP, and private insurance; public and private managed care reforms and innovations; public program changes and impacts; reimbursement policies and options; pediatric workforce issues; service delivery and financing models; and assessments of health care needs and access among adolescents and children with special needs. Our past and present clients include federal and state agencies, major foundations, national organizations, and universities. National Academy for State Health Policy Cornucopia Of Disability Information for Children with Disabilities
National Dissemination Center for Children with Disabilities provides information to the nation on:
• programs and services for infants, children, and youth with disabilities;
• IDEA, the nation's special education law;
• No Child Left Behind, the nation's general education law; and
• research-based information on effective practices for children with disabilities.
Federal TBI Program Web page the Health Resources and Services Administration's (HRSA) Maternal and Child Health Bureau (MCHB) Federal Traumatic Brain Injury. This page provides a brief overview of the Federal TBI Program, including descriptions of its goals, grant categories, TBI Technical Assistance Center at the National Association of State Head Injury Administrators, collaborators, systems change efforts, and one TBI publication available through the HRSA Information Center.
Family Voices, a national grassroots network of families and friends, advocates for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent for all children and youth with special health care needs; promotes the inclusion of all families as decision makers at all levels of health care; and supports essential partnerships between families and professionals. Learn more about our organization.
Emergency Medical Services for Children—National Resource Center
Family Center on Technology and Disability serves a network of 1100 organizations that provide information and services to families of children with disabilities. Offers a variety of resources on the subject of assistive technology, including two fully searchable databases, a monthly newsletter, monthly online discussions, and an infomation-rich website.
National Center on Educational Outcomes provides national leadership in the participation of students with disabilities & limited English proficient students in national & state assessments, standards-setting efforts, & graduation requirements.
The MCH Policy Research Center is a health policy group that provides federal and state policymakers, public health officials, and provider and family organizations with analysis, objective research, and strategic guidance on financing and service delivery issues affecting children and adolescents, particularly those with special needs and those from low-income families.
NASHP recognizes that responsibility for health care does not reside in a single state agency or department and provides a unique forum for productive interchange across all lines of authority, including executive offices and the legislative branch. NASHP is a non-profit, non-partisan organization dedicated to helping states achieve excellence in health policy and practice.
CODI serves as a community resource for consumers and professionals by providing disability information in a wide variety of areas. It consists of both an Internet Directory of Disability Information and a repository of electronic disability documents, dating back to the early 1990s. Many of the documents on CODI are publicly available nowhere else on the Internet.