Caregivers' Corner
Additional Resources and Organizations
Date Created
Date Modified
- After Brain Injury, Tools for Living
- A Step-by-Step Guide for Caregivers & Survivors of Brain Injury
- Family Caregiver Alliance
- FCA has developed a wide array of services based on the needs of caregivers. Their site is described as a "one-stop center for caregivers."
- National Family Caregivers Association
- The NFCA supports is a grass roots organization created to educate, support, empower and speak up for family caregivers.
- CaringRoad
- CaringRoad is an Internet community for caregivers featuring information, personal stories, and advice. The CaringRoad Support Network helps caregivers meet other caregivers, based on geography, diagnosis or family relationship. Founded by Karen Mintz, a New Jersey documentary producer. By phone contact 609-773-0773.
- Caregiver Media Group
- Provides information, support and guidance for family and professional caregivers. Publishes Today's Caregiver Magazine and offers a web site with topic-specific newsletters, online discussion lists, chat rooms and an online store.
- Personal Care Attendants
- Information from Craig Hospital on finding, hiring and keeping reliable PCAs. From the home page, click on Health and Wellness under the Spinal Cord Injury section, then click on Educational Brochures. Scroll to the Caregiving
- Orange Caregiver Resource Center
- The OCRC is a trusted partner for Orange County families coping with the physical, emotional, and financial responsibilities of caregiving. OCRC provides families with support services and is the only organization specializing in assisting YOU, the caregiver coping with the changes brought about by chronic illness or adult onset brain impairment. The OCRC, a program of St. Jude Medical Center, is part of a statewide system of Caregiver Resource Centers serving family caregivers, contracted through the California Department of Mental Health with additional funding from the California Department of Aging funds from the federal Older Americans Act, as allocated by the Orange County Board of Supervisors. Since 1988, OCRC has assisted thousands of families and professionals who care for an adult over age sixty or who has brain impairing conditions such as Alzheimer's, stroke, Parkinson's, head injury, and Huntington's disease .
- Caregiver Media Group
- Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers. Founded in 1995, we produce Today's Caregiver magazine, the first national magazine dedicated to caregivers, the "Sharing Wisdom Caregivers Conferences", and our web site, caregiver.com which includes topic specific newsletters, online discussion lists, back issue articles of Today's Caregiver magazine, chat rooms and an online store. Caregiver Media Group and all of it's products are developed for caregivers, about caregivers and by caregivers.
- National Family Caregiver Support Program
- The Caregiver Resource Room is where families, caregivers, and professionals can find information about The National Family Caregiver Support Program, including: where you can turn for support and assistance, and providing services to caregivers.
- National Respite Locator Service
- The National Respite Locator Service helps parents, caregivers, and professionals with disabilities, those with chronic or terminal illness, or children at risk for neglect and abuse find respite services in their state and local area.
- Center for Family Caregivers
- The Center for Family Caregivers helps family members understand their caregiving journeys--the how's, why's and when's. Their Kits for Caregivers program, teaches family caregivers how to cope throughout their caregiving experiences.
- The Caregivers Advisory Panel
- The purpose of TCAP is to assemble a large body of knowledge from caregivers to advise health care manufacturers and service providers as well as policy makers, about their needs, wants and opinions related to caregiving. Unlike one individual survey, a dedicated panel of family caregivers provides an ongoing resource of knowledge, insight and wisdom. Among membership benefits, caregivers are able to test new products.
- Caregivers USA
- Caregivers-USA is a free, nationwide database that puts caregivers in touch with more than 40,000 support services nationwide.
- Resources for Caregivers
- This site posts an extensive list of links to caregiving service web pages.
- National Organization for Empowering Caregivers
- NOFEC provides assistance, education, support and referrals for informal family caregivers, and promotes public awareness about the realities of caregiving.
- Well Spouse Foundation
- Well Spouse is a national, not for profit membership organization which gives support to wives, husbands, and partners of the chronically ill and/or disabled.
- TBINET
- TBINET was started in 1995 by a small group of Caregivers who had loved ones with various types of brain injuries. We had a strong need to communicate with others in our situation, but little time to do so. We put up a website devoted to helping people find information on ABI/TBI and we provided a little of our own. In 1996 we started 2 Support Mailing Lists. TBI-LIVING for people with brain injuries and CARE-TBI which was for Caregivers.
- Shepherd's Centers of America (SCA)
- An interfaith, not-for-profit organization that coordinates nearly 100 independent Shepherd's Centers across the U.S to help older adults remain independent in their own living situation.
- Recovery Awareness Foundation
- The Recovery Awareness Foundation’s purpose is to assist the primary caregiver of people who have suffered a brain injury. The organization is comprised of caring people who have been through a brain injury as a caregiver, making theme uniquely equipped to help others.
- The Caregivers Advisory Panel
- Collects confidential information on the opinions and needs of family caregivers to help health care products manufacturers and service providers to create innovative products, services, programs and support for America's caregiving families.
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